8 Mar 2005 - Recomended Reading

PERMISSION TO REPOST
Campaigning for Research into Myalgic Encephalomyelitis


FAIR REPRESENTATION AT PARLIAMENT

The recent job descriptions confirm ME patients' worst fears
re. the new 'CFS/ME' centres and satellites: more
psychiatric/psychological style treatment...

As is the case also with the PACE and FINE trials.

What is also becoming evident is that these projects will
not be about Ramsay G93.3 ME but a whole range of illnesses
and disorders...

People with ME fear the results of both projects: The all
inclusive, onesize fits all approach will mean the results
will most probably be successful for the majority of
participants listed under the 'CFS/ME' banner but then used
as an excuse to set back the case for physical research into
G93.3 ME.

We feel it is vital at this stage that a range of views is
heard at Westminster - with this in mind, please consider
signing RiME Petition 2, which will run for two more weeks.
Signatures can be accepted over the 'net and added with pp
next to them.

Best Wishes, Paul Davis

rimexx@btinternet.com

http://www.erythos.com/RiME/